Swallowing issues in Parkinson’s: A care partner’s perspective

Published on October 9, 2023

Imagine trying to eat your favorite meal, but every bite is a struggle. For people with Parkinson’s disease, this is a daily reality. Swallowing issues, known as dysphagia, are common in Parkinson’s and can lead to aspiration pneumonia, a serious condition that can be deadly. Hospitalization can exacerbate these challenges, as healthcare providers often lack understanding of how to manage dysphagia in Parkinson’s patients. However, a new article sheds light on this issue from the perspective of a care partner. It offers recommendations for improving standards of care, emphasizing the need to involve care partners in the hospitalization process. By working together, patients and care partners can better navigate the complexities of dysphagia and ensure that appropriate measures are taken to prevent and manage it during hospital stays. As we continue to learn more about dysphagia and Parkinson’s disease, it is crucial that we implement these findings into practice to enhance the quality of care and ultimately save lives.

People with Parkinson’s disease have a significantly increased incidence and risk of aspiration pneumonia when compared to those without. Aspiration pneumonia associated with dysphagia (swallowing issues), which is the leading cause of death among people with Parkinson’s disease, accounting for 25% of Parkinson’s deaths. There is relatively limited evidence of the most effective strategies to balance the competing needs of each Parkinson’s patient as providers aim to prevent, diagnose, and manage dysphagia. Exacerbated, and in part caused, by the intricacies of dysphagia and Parkinson’s disease, there is still limited understanding among hospital providers and the Parkinson’s community regarding the most appropriate measures to prevent and manage dysphagia in Parkinson’s disease. The Parkinson’s Foundation Hospital Care Recommendations identified the prevention and management of dysphagia as a care standard necessary to eliminate harm and attain higher reliability in care. This article discusses key components of dysphagia management in the hospital, provides a case example to demonstrate the challenges that people with PD and their care partners experience in the hospital related to dysphagia, and offers recommendations on how to better manage dysphagia and involve care partners in PD hospital care.

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